DONATESAMPLE DATA
Sample Data
Patient information is collected from consented donors and anonymised for complete privacy and confidentiality. It is important to ensure data accuracy and complete information to the researcher for deriving clinicopathological correlations.
General
- Age, gender, race, marital status, ethnicity, country.
- Height and weight.
- Bio specimen reporting for improved study quality (BRISQ) details which include sample unique identification number (UIN), matrix location, accession number, bio specimen type, cancer type, method of collection, hemolysis status in case of blood, time of collection, cold ischemia time (CIT), weight of the tissue, type of initial stabilization, type of long term preservation, Preservative if any used, final storage temperature.
Clinical History
- Date of diagnosis, presenting complaints, duration, laterality, site, size of lesion.
- Clinical staging, Comorbidities , addictions and habits , lifestyle factors.
- Gender specifics like obstetrics and menstrual information. Detailed data regarding menstrual history, menopause and hormone replacements .
Radiological Annotations
Method of radiological assessment like MRI, CT, PET CT, CXR, USG, Mammography, Bone scan, CT Chest, MR mammo, and their respective findings.
Pathological Annotation
- Complete histopathological report with IHC results.
- Cancer specific IHC details like Estrogen receptor status, Progesterone receptor status, Her 2 + status, method of evaluation are also included.
- Genomic IHC data, molecular testing data for individual genes as well sequencing data for cancers like Colorectal cancers, Lung cancer and Melanomas can be provided on a chargeable basis.
Treatment Annotation
- Type of chemotherapy, Therapy dates, Regimen, number of cycles, toxicity details
- Default status
- Chemoimmunotherapy
- Radiotherapy, radioimmunotherapy, the type of site for the radiotherapy, technique, type of radiation used, and dose of radiation.
- Hormonal therapy
- Total treatment taken
Follow up and survival data
- Follow up details from 6 months post treatment and their status.
- Complete follow up of 3-5 years.
- Details of recurrence , findings, and details of secondary treatment, any other treatment details
- Deceased status - Date of death, and cause of death.
- Survival details include date of registration, date of completion of treatment, date of last visit and status of the last visit.
